Sunday Report
We haven't been as diligent at posting as we were throughout the life or death ordeal. However, Shorty can see a great deal of improvement since he had not seen Lori for ten days until yesterday.
She sat up in a chair and went for an outdoor tour around the gardens at Shepherd. She does tire easily because of the breathing and lung situation. She is basically off the vent during the day and on it at night. She is still being suctioned and removing plugs of mucus from her lungs.
We have decided to alternate the trach voice plug, as there is one with and one without oxygen that affects the lungs. Without O2 the mucus dries and hardens making it difficult to get up and this tires Lori out so when talking and breathing. Thus, we are going to limit talking and visiting.
Had two nice visits from Coast folks yesterday, but she tired easily. Had a big mucus removal and breathing treatment late yesterday afternoon and was much better afterwards.
Progress is slow, but obvious. She must be able to sit up in her chair for six hours before she can even start rehab, thus she is still considered in acute care, rather than in rehab yet. Dad is guessing it will be another two to three weeks before rehab can begin. She still just needs strength as she has been down so long, and as a quad one just does not recover as rapidily as an able bodied person from sepsis. That's why they coined the word "patient" for someone in the hospital.
As always, all the Sneed's thank you for your prayers and support.
She sat up in a chair and went for an outdoor tour around the gardens at Shepherd. She does tire easily because of the breathing and lung situation. She is basically off the vent during the day and on it at night. She is still being suctioned and removing plugs of mucus from her lungs.
We have decided to alternate the trach voice plug, as there is one with and one without oxygen that affects the lungs. Without O2 the mucus dries and hardens making it difficult to get up and this tires Lori out so when talking and breathing. Thus, we are going to limit talking and visiting.
Had two nice visits from Coast folks yesterday, but she tired easily. Had a big mucus removal and breathing treatment late yesterday afternoon and was much better afterwards.
Progress is slow, but obvious. She must be able to sit up in her chair for six hours before she can even start rehab, thus she is still considered in acute care, rather than in rehab yet. Dad is guessing it will be another two to three weeks before rehab can begin. She still just needs strength as she has been down so long, and as a quad one just does not recover as rapidily as an able bodied person from sepsis. That's why they coined the word "patient" for someone in the hospital.
As always, all the Sneed's thank you for your prayers and support.
posted by Lori (typed by a friend :) | 10:05:00 AM
5 Comments:
Although it is always good to see friends and family, I remember the strain it took on me to go through my rehab and then "entertain" in between and afterwards. For those of us who are able to come visit, would Lori best be served if we just support her from a distance. I know that I felt an obligation to visit with everyone who came to see me, especially those who traveled from out of town, and as much as I loved seeing everyone, some days I just wanted to rest. I say all this to ask the question. At this point in her recovery, are there certain times or days when Lori would appreciate some down time or should we just support her from afar until you let us know otherwise? I, like so many others, want to see her, but not to her detriment. If you all could provide a little guidance on that, it would appreciated. Keep fighting Lori.
Danny
Doug and I were wondering the same thing as Danny. We are planning a visit to Atlanta in early September which may be just right for a visit. Love to get your input on this when we get closer to the date. Glad to hear about the ongoing recovery. Love and best wishes as always. We're in the midst of a major thunderstorm down here. We need the rain but not the power outage that attended it. AMAZINGLY---there are signs that perhaps we are NOT living in a third world country after all---the power came back on after only 20 minutes or so even though it is still raining!!!! As lori and all of us well know by know---Miracles do happen! Best, Jennifer and Doug
Pebs- Mama Patti said when I get from D.C. next Sun. or early in the next week would be good time for me to come and be with you. Cant wait to see you again. I know your having your up and down days but you have so many peeps who love and are praying for you. Stay strong as always. Love you tons and tons....
Lori: I just wanted to say how excited I am that you are doing better. Love, John
lori, lori,lori,
just checking in with you---thinking about you and envisioning resilent strength for you!!!! keep hacking up that mucus. ;)
lots of love!xoxoxoxoxo
tp
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